Written By For individuals with lupus, navigating the challenges of a chronic illness can be difficult enough. But when you add the impact of systemic racism into the mix, the challenges can become even more complex and overwhelming. From disparities in healthcare access to discrimination in the workplace, the intersection of lupus and racism creates unique challenges for individuals living with this disease.
Lupus is an autoimmune disease that affects an estimated 1.5 million Americans, and it disproportionately affects women and people of color. Black individuals, in particular, are more likely to develop lupus and experience more severe symptoms and complications.
One of the most significant challenges facing individuals with lupus who also face racism is accessing appropriate healthcare. Studies have shown that black individuals with lupus are less likely to receive appropriate treatment and care, leading to poorer outcomes and higher mortality rates.
Discrimination in the workplace is another challenge faced by individuals with lupus who also face racism. Lupus can cause significant fatigue, joint pain, and other symptoms that may impact a person’s ability to work. But when employers fail to provide reasonable accommodations or make assumptions about a person’s ability to work based on their race or gender, individuals with lupus can face significant barriers to employment and financial stability.
The intersection of lupus and racism can also impact mental health. The stress of living with a chronic illness, combined with the stress of experiencing racism and discrimination, can take a toll on mental health and wellbeing. Black individuals with lupus have reported feeling isolated and unsupported, and studies have shown that they are more likely to experience depression and anxiety than white individuals with lupus.
Despite these challenges, there is hope for change. Advocacy organizations and healthcare providers are working to increase awareness about the intersection of lupus and racism and to improve access to appropriate care and support for individuals who face these challenges.
As individuals, we can also play a role in supporting those with lupus who face racism. This can include advocating for healthcare access, supporting lupus research, and educating ourselves about the intersectional challenges of chronic illness. It can also mean listening to the experiences of those who face these challenges and working to create a more inclusive and supportive community.
In the end, the intersection of lupus and racism highlights the need for a more comprehensive approach to healthcare and advocacy. By addressing the unique challenges faced by individuals with lupus who also face racism, we can work towards a more equitable and supportive future for all.
